What should you do if you think you have Ehlers-Danlos Syndrome (EDS)? Which doctors should you see? In this video, I tell you what you should do if you think you may have EDS as well as answer some of the most common questions people have about EDS, like do you need to have stretchy skin, do all hypermobile people have EDS, etc?
Are hypermobility, JHS, HSD, and hEDS the same thing? Watch this earlier video I made!
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What is Ehlers-Danlos Syndrome? EDS is a genetic connective tissue disorder that causes certain mutations to aspects or types of connective tissues and results in connective tissue that is abnormally weak, fragile, and stretchy. Connective tissue is found in all parts of the body, including your organs, ligaments, and joints. As a result, people with EDS can be affected in all of these areas, as well as more. The most common symptoms and co-morbidities include pain, dysautonomia, dislocations, GI tract dysmotility, severe joint instability, and many more. The disorder is somewhat rare, estimated to affect around 1 in every 5,000 people. However, it’s speculated by many to not be as rare as we once believed.
More info about EDS:
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mayo clinic, marfan syndrome, izzy kornblau,